Hello my dear family. I am Esila Erva ANNAC. When I was just 20 days old, I was diagnosed with SMA TYPE 1 FATAL MUSCLE PATIENT, and I was the earliest baby diagnosed with SMA in Turkey. The treatment of this disease is only zolgensma medicine abroad. We started a *GOVERNOR’S PERMISSION* campaign for me to access this treatment, which is not available in our country. But my campaign is progressing very, very slowly. I have little time, so much hope. Will you support me and give voice to my voice so that my campaign can progress rapidly?